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Advocacy Day 2010 Video

Take Legislative Action Now!
The Advocacy Agenda of the National Fragile X Foundation
The Fragile X Caucus

  • The Fragile X Caucus

    A congressional caucus is a group of members of the United State Congress that meets to pursue common legislative objectives and priorities. Caucuses are formed as congressional member organizations (CMOs) through the US House of Representatives.

    The Congressional Fragile X Caucus was formed in 2009 by Congressman Bill Delahunt (D-MA), Congressman Phil Hare (D-IL), and Congressman Gregg Harper (R-MS). The Congressional Fragile X Caucus focuses on raising awareness about Fragile X-associated Disorders and advocating for additional federal funding for research and development. Representatives Delahunt, Hare, and Harper serve as the co-chairmen of the Congressional Fragile X Caucus, which currently has ten members.

    Congressional Fragile X Caucus Members (May 2010)
    Rep. William Delahunt (MA-10)
    Rep. Gregg Harper (MS-03)
    Rep. Phil Hare (IL-17)
    Rep. James P. Moran
    Rep. Harry Mitchell (AZ-5)
    Rep. Thaddeus McCotter (MI-11)
    Rep. Mary Bono Mack (CA-45)
    Rep. William Cassidy (LA-6)
    Rep. Aaron Schock (IL-18)

More Information

Learn how a Bill becomes a law

Visit the THOMAS World Wide Web site at the Library of Congress [Link to THOMAS Home Page]
Acting under the directive of the leadership of the 104th Congress to make Federal legislative information freely available to the Internet public, a Library of Congress team brought the THOMAS World Wide Web system online in January 1995, at the inception of the 104th Congress. Virtually anything you want to know about what Congress is doing and how it's accomplished can be found at THOMAS.

Photo Gallery
Advocacy Day 2010 Advocacy Day 2

With Rep. Ron Klein (L to R) Mark Dissette, Alex Planas, Joseph Dissette, Rep. Ron Klein, Rosie Perez, Manny Perez

With Rep. Mario Diaz-Balart (L to R) Manny Perez, Rosie Perez, Rep. Mario Diaz-Balart, Alex Planas
Advocacy Day 3

With rep. Ileana Ros-Lehtinen (L to R) Manny Perez,
Rosie Perez, Rep. Ileana Ros-Lehtinen, Alex Planas
and Msgr. Casale of St. Thomas University, Miami, FL

Senator Stabenow, Josh Cohen Kim Young, Laureen Majeske, Josh Cohen, Senator Stabenow, Jeffrey Cohen, Arlene Cohen

Senator Debbie Stabenow of Michigan is presented with the NFXF Champion Award for her leadership and support of Fragile X funding.

L-R Senator Stabenow, Josh Cohen
L-R Kim Young, Laureen Majeske, Josh Cohen, Senator Stabenow, Jeffrey Cohen, Arlene Cohen
George Radanovich and John Harrigan

On behalf of the Foundation and its California Central Valley Fragile X Resource Group, John Harrigan, Board President (right) presented an award to Representative George Radanovich of California in appreciation for his leadership of our legislative agenda in 2004 and again in 2005.

Parent Holly Roos presents NFXF award to Congressman Phil Hare of Illinois.
Specter with Parker and Cohen Harkin with Cohen and Judges

Senator Arlen Specter of Pennsylvania received the Congressional Champion Award" from Bill Parker (left) and Jeffrey Cohen.

Senator Tom Harkin of Iowa receives the "Congressional Champion Award" from Jeffrey Cohen (left) and Joe & Tricia Judge.

 

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